Shizleen Aishath said she would do anything to get the appropriate care for her son. (ABC News: Sebastian Neuweiler)
A family from the Maldives is locked in a desperate legal fight to stop their two-year-old son being deported from Australia because of his disability, amid fears being forced to move could lead to an early and painful death.
- Kayban Jamshaad was born in Australia with severe health problems, including a brain injury
- Medical experts say the boy faces the threat of an early death because the Maldives cannot manage his complex needs
- The Department of Home Affairs found there was insufficient “compelling” or “compassionate” reason for a waiver
Kayban Jamshaad has severe haemophilia — a bleeding disorder which stops blood clotting — and an acquired brain injury, which occurred when he was born at Bunbury Hospital in Western Australia.
He requires weekly medication for his haemophilia and round-the-clock care to manage spastic quadriplegia, visual impairment, seizure disorder and developmental delays arising from his brain injury.
Medical specialists said the Maldives was not equipped to manage Kayban’s complex health needs, and forcing him to live there would most likely be fatal.
“It’s actually [the difference] between him staying alive and dying, as hard as it is to put into words,” said his mother, Shizleen Aishath.
Doctors sound grave warnings
In a letter provided to the Department of Home Affairs, his rehabilitation physician warned that without proper care, Kayban would likely suffer a severe shortening of his muscles and joints, curvature of the spine, “osteoporosis, with a high risk of pathological fractures, hip dislocation, malnutrition, respiratory failures and premature death”.
WA Health’s Haemophilia Service also advised the department that the Maldives does not have the resources or systems in place to provide adequate treatment.
Despite those warnings, the department ruled there was not enough documentary evidence, or “compelling” and “compassionate” circumstances, to grant Kayban a health waiver that would allow him to stay.
“The refusal to allow a child to stay even though he faces the certainty of a painful and premature death — if that’s not sufficiently compassionate and compelling then I don’t know what is,” said migration agent Jan Gothard, who is a health and disability specialist with Estrin Saul Lawyers, which is handling the case.
Kayban’s mother is currently working as a social worker in Bunbury and holds a temporary skilled shortage visa.
Her husband, daughter and other son were all granted support visas.
‘It comes down to an algorithm’
Under Australia’s immigration laws, applicants can be rejected if they have any condition which could result in significant healthcare costs or prejudice the access of Australian citizens and residents to health services.
The department estimated Kayban’s health costs would be $59,000 a year.
It said it was not satisfied his family could cover that cost, despite them doing so for almost three years without any access to any public health support, including Medicare.
“I’d like to think we are managing fine — all our bills are covered,” Mrs Aishath said.
Dr Gothard said the visa that Kayban applied for would disqualify him from receiving any public health benefits, so the estimated costs were irrelevant.
“These costs simply cannot accrue, and yet [applicants] are costed and they fail the health requirement as if they were going to be able to access these services,” she said.
“It’s not logical, it’s not rational, it’s just silly.”
Kayban’s case has been taken to the Administrative Appeals Tribunal — a legal process that could take months.
While the family awaits that outcome, disability advocates say it is yet another example of Australia’s discriminatory immigration laws.
“Frankly it’s obscene that we treat people with a disability this way,” said Dwayne Cranfield, the chief executive of the National Ethnic Disability Alliance.
“People are broken down to a cost-benefit essentially, it comes down to an algorithm — the humanity is taken out of the situation, you become an equation.”
Law exemption allows disability discrimination
Dr Gothard says dozens of families are affected every year, and the impact is even more widespread.
“I think it sends a very strong message to people with disability living in Australia … that basically people with disabilities are considered a burden on the Australian society, she said.
“They’re not deemed to contribute in any way at all and, given the choice, the Australian Government would much rather they weren’t here.”
Kayban’s family is waiting for a decision on his case from the Administrative Appeals Tribunal. (ABC News: Sebastian Neuweiler)
The department said it would not comment on individual cases, but insisted its policy was not discriminatory.
“All applicants are treated in an equal and fair manner,” a spokesperson said.
But Dr Gothard said that was “bureaucratic doublespeak”, and pointed to the Migration Act’s exemption from the Disability Discrimination Act, to allow discrimination on the grounds of disability in migration decisions.
Mrs Aishath’s employer told the department she would be “exceedingly difficult to replace” if her family was forced back to the Maldives, and “it would be a great loss to our company and to the region.”
Many families face same fate
The treatment of Kayban and his family is not unique.
A Seymour couple, who moved from Ireland to central Victoria in 2009, have been rejected for permanent residency because they had a son who was later diagnosed with cerebral palsy.
On Queensland’s Western Downs, a family of six is fighting deportation back to the Philippines because of their son’s autism.
And in Queanbeyan, a Bhutanese family fears their hearing impaired son, who has learned Australian sign language, will experience a “world of isolation” as they face deportation because of his disability.
Another woman who knows first-hand the perils of Australia’s immigration system is Nicole Forbes-Hood, who endured a two-year struggle to secure a visa for her son Cameron.
Her family moved from New Zealand to Beerwah, on Queensland’s Sunshine Coast Hinterland, in 2009.
Within a few years, both parents and one daughter had citizenship or permanent residency, but Cameron was rejected multiple times because of his autism and intellectual disability.
“It felt really awful,” Ms Forbes-Hood said.
“Just because he’s got an intellectual disability and has special needs doesn’t mean he can’t contribute to the community and society as a whole.”
Ms Forbes-Hood finally got residency for her son after a final appeal to the immigration minister. (ABC News: Tara Cassidy)
By July 2017, the family had spent more than $20,000 in legal fees and were resigned to moving back to New Zealand.
But a last-ditch appeal to the then-Immigration Minister, Peter Dutton, was successful, and Cameron was granted permanent residency.
Ms Forbes-Hood said it was a disgrace that other families were still enduring the same problems.
“I just think it’s so unfair that other families can be treated like that,” she said.
For Shizleen Aishath, the legal fight adds an extra layer of complexity to the day-to-day realities of raising a young family.
“We’ve been trying to survive the system for three years and, to be entirely honest, I don’t know how much longer I can do it,” she said.
“As a mother, all I know is that I would do anything to make sure that Kayban gets the care he needs to be able to stay alive and not be in pain.”